Stacy
Picard of Knoxville, Iowa, thought having a fifth child would
be easy.
“The
first couple children you worry about something going wrong,
but after that you don’t even think about the possibility of
a disability,” said 30‑year‑old Picard in a telephone
interview. Due this June 20, she learned only several months
ago that her next child would have spina bifida.
The
Web site of the Spina Bifida Association calls spina bifida,
which affects about 70,000 Americans, “the most common permanently
disabling birth defect.” It occurs in the first month of pregnancy
when the spinal column doesn’t fully close, and usually leads
to some type of permanent paralysis.
“Initially,
we were shocked,” Stacy said. “But after having time to process
the news, we were able to think it through. Fortunately, (husband)
Joel and I have known several people raising children with disabilities.”
It
was this familiarity with disability that helped them digest
the news. “And every one of these people (with disabled children)
said having a child with a disability had been the biggest blessing
that could have happened to their families,” she said. “That
may be to them, but it sure doesn’t feel like a blessing (to
us) right now.”
The
ages of the other Picard children are seven, six, three and
one. Their child due in June will be called Isaiah.
Just
this past February, a friend from church told the Picards of
a National Institutes of Health study program at Vanderbilt
Medical Center in which surgeons were operating on children
with spina bifida inside the womb before birth. Several years
ago this kind of experimental procedure made world news when
a photo from one such operation showed the hand of an unborn
baby grabbing a surgeon’s finger.
Picard
has been chosen for the program’s “control” group, meaning Isaiah
won’t be operated on while in the womb but after a full‑term,
C‑section birth.
So
on or about June 20, Vanderbilt Medical Center surgeons in Nashville,
Tenn., will close the hole on baby Isaiah’s lower spine and
install a brain shunt to stem hydrocephalus–the accumulation
of spinal fluid within the brain. Also, Isaiah will have club
feet, and bowel and bladder challenges.
“If
my husband (who is a pastor) is uptight, he isn’t letting it
show,” Picard related. “He has strong faith and reassures me
we don’t need to spend time worrying because this is part of
God’s plan.”
For
more, see danieljvance.com
or health.nih.gov.
This column is made possible by a grant from Blue Valley Sod,
www.bluevalley
sod.com