Lori
Maynard learned last year that her daughter
had rheumatoid arthritis. The diagnosis
followed “about three months of rapid degenerative
illness,” said Maynard in a telephone interview
from her New Jersey home.
A
National Institutes of Health Web site defines
rheumatoid arthritis as a chronic autoimmune
disease causing inflammation of the joints
and neighboring tissues. Wrists, fingers,
feet, ankles, and knees are most commonly
affected. The onset usually occurs in people
between ages 25 and 55.
Said
Maynard of her then 11‑year‑old
daughter, “Emily got sick around Thanksgiving
2005 and her wrist started hurting. She
wore bandages to support her wrists while
she played. We thought it was just growing
pains. Then in December she woke up in the
night screaming because both her feet were
in excruciating pain.”
In
January 2006, a pediatric orthopedic surgeon
diagnosed her with plantar fasciitis, a
common foot ailment, even though Maynard
had said her deceased father had rheumatoid
arthritis.
A
week later at a swimming lesson, Maynard
noticed her daughter walking oddly. “Her
strange limp reminded me so much of the
way my dad used to walk,” said Maynard.
Fortunately,
Maynard’s brother‑in‑law was
an orthopedic surgeon and within a month
he would diagnose Emily with rheumatoid
arthritis. Immediately, Emily was put on
a steroid, which helped her walk, and later
she began a chemotherapy treatment approved
for people with rheumatoid arthritis.
“Emily’s
diagnosis made me completely afraid,” said
Maynard. “My father was diagnosed at 22
and spent a year in the hospital. I was
born when he was 36, and by then his hands
and feet were bent and deformed, and his
elbows locked at a 90‑degree angle.
Because of the steroid, eventually he lost
bone density, and in his sixties his spine
began collapsing before he died.”
After
hearing her daughter’s diagnosis, Maynard
would cry for nights. Emily was hurting
every hour of every day.
Today
Maynard’s mood is more upbeat. “For one,
new medications have made her prognosis
so much better than my dad’s,” she said.
“The progression of the disease has been
halted. Secondly, Emily has discovered she
has a gifted singing voice. She began voice
lessons and when she sings she forgets the
pain.”
She
added, “I feel for parents who have sick
kids. Every parent wants their child to
do great things. I now have that hope again
for Emily.”
For
more, see danieljvance.com
. This column made is possible by a grant
from Blue Valley Sod, bluevalleysod.com.