This
was one of those difficult‑to‑write
columns.
It
was only three years ago when Lisa
Adams of Grove City, Ohio, first learned
her then 4‑year‑old daughter,
Eden, had neuroblastoma. A National
Institutes of Health Web site defines
it as “a malignant (cancerous) tumor
that develops from nerve tissue” and
occurs in infants and children. According
to Adams, only 600 American children
are diagnosed each year.
“We
found out in July 2004 that Eden has
neuroblastoma,” Adams said in a telephone
interview. “She could hardly walk
and had excruciating hip pain. At
first they thought she had juvenile
rheumatoid arthritis or rheumatic
fever.”
In
time, doctors discovered cancer in
Eden’s bone marrow, and soon thereafter
they detected a five‑centimeter‑square
tumor behind her liver.
Said
Adams, “Up front they did six rounds
of chemotherapy, then a bone marrow
transplant using her own stem cells,
twelve rounds of radiation, and then
she went on a medication.”
No
cure exists for neuroblastoma. Survival
odds are less than 30 percent, said
Adams. But after a relapse, those
odds drop to less than 5 percent.
Eden has relapsed twice.
“We
are living day‑by‑day,”
Adams said. “You can’t look any further
ahead than that and still be able
to function. Eden has been lucky.
Most children who relapse become immune
to standard chemotherapy, but with
Eden that hasn’t been the case.”
After
having watched three friends die from
neuroblastoma, and having been told
she has it, Eden nonetheless hasn’t
yet put two and two together. Such
has the advantage of being only 7
years old. Her mother and father have
joint custody of her, and she has
a 13‑year‑old brother.
Adams
said, “It’s toughest watching the
(chemotherapy and radiation) treatments
and knowing that what they are doing
to save her is actually poisoning
her body.”
To
help Eden get through emotionally,
Adams and her ex‑husband have
been encouraging their daughter every
way possible. Half the battle of beating
any illness, Adams said, comes from
believing the illness can be beaten.
Adams
herself has been encouraged. Just
recently, 20 volunteers organized
a benefit yard sale to help cover
some of Eden’s medical expenses. People
from all over Ohio donated items.
“All
the family, friends, and strangers
who are rallying around us is like
nothing I have ever seen in my life,”
she said.
For
more, see danieljvance.com
. This column made is possible by
a grant from Blue Valley Sod, bluevalleysod.com.