Over
the years I’ve read a lot of news
items about people with disabilities.
One newspaper report on Donna Joy
and Lori Vance, of Rogersville,
Tenn., especially caught my eye
because of the last name.
“When
I was seven‑months pregnant
with (Donna Joy), an obstetrician
said her condition was ‘completely
incompatible’ with life,” said 42‑year‑old
Lori Vance in a telephone interview.
Though doctors were urging her to
abort late‑term because they
thought the unborn child would die
outside the womb, Vance gave birth
in November 1991.
Donna
Joy was missing over half her brain,
and what was left was “small and
wrinkled, abnormally disfigured,”
said Vance. Donna Joy had cerebral
palsy, holoprosencephaly, hydrocephalus
and arnold‑chiari malformation.
At birth her head was swollen, and
brain tissue protruded through a
small hole in her head.
“And
yet she was absolutely gorgeous,”
said Vance. Doctors told Vance that
Donna Joy didn’t have any speech
center, independent thought processing
center, memory, or gross and fine
motor abilities. They said she had
a damaged visual center. To keep
her alive that first year, Vance
fed Donna Joy formula drop by drop
through a syringe.
What
became of Donna Joy sixteen years
later? Said Lori Vance, “She just
won an honorary title in a beauty
contest and was Honorary Miss Fourth
of July Rogersville Princess. She
talks almost constantly, and is
quite ambulatory, even taking track
medals in the Tennessee Special
Olympics.”
Donna
Joy is mainstreamed at public school
for art, music and physical education.
According to Vance, Donna Joy is
the highest functioning special
education student at her Rogersville
school, and often is called upon
to help other students.
Said
Vance, “You have to understand how
amazing this is, especially when
you meet her and she greets you
with a hug. It is simply not logical
for a child to succeed with this
kind of damaged brain stem and so
little brain available.”
Doctors
have absolutely no explanation for
how or why Donna Joy has survived,
let alone flourished. Before her,
no child with her condition had
even lived beyond age 2.
The
Vances became well‑known in
1997 when Lori testified before
Congress in support of the Partial
Birth Abortion Ban Act, and they
were present in 2003 at the act’s
signing. Vance advises women facing
similar circumstances to continue
on with their pregnancy.