Curtis
coped with it best she could by falling
in love with music, graduating with honors
from the heralded Eastman School of Music,
and eventually performing as a violinist
in orchestras.
Yet
growing up she had daily bouts with epilepsy
of varying intensity. Her seizures even
disqualified her for a driver’s license.
In
1990, she hit rock bottom after experiencing
grand mal seizures in three separate performances.
With her professional career hanging in
the balance, she checked into the Cleveland
Clinic for a solution.
“Doctors
first put me into a monitoring unit,” Curtis
said in a telephone interview. “They implanted
dozens of electrodes, two in my jaw, plugged
me into a computer and trained a camera
on me.”
An
epileptologist learned her brain was misfiring
behind the right temporal lobe, which usually
is good news, said Curtis, because surgeons
can more easily remove that part of the
brain to end the seizures.
“But
they had never done this operation on a
professional musician,” she said, implying
that her professional skills could have
been compromised. “So they went conservatively
that first operation.”
After
further tests, and more seizures, the brain
surgeon went in again, this time to remove
Curtis’s hippocampus and part of her amygdala.
“After
the second operation they couldn’t understand
why I was still seizing,” she said. “They
believed what was left of the amygdala was
causing it. It’s an almond‑shaped
piece of the brain that’s the hotbed of
emotions.” After two more operations, and
with strong medication, Curtis has been
seizure‑free since 1995.
And
she has powerful advice, saying, “Some people
with epilepsy are sitting on couches, afraid
of going out and seizing in front of people.
Figure out what you love and go do it. If
a seizure happens, that’s all right. When
you come to, you will have something you
love.”
She
strongly recommended that people with epilepsy
see an epileptologist, which is a neurologist
specializing in epilepsy.
For
more, see danieljvance.com.
This column made possible by a grant from
Blue Valley Sod, www.bluevalleysod.com.